Tuesday, 20 June 2017

Hot News

Yesterday was so so hot!

I don't feel like I'm in England anymore. Looks like one of those tropical countries!

I don't even try going outside in this heat. I do feel a bit sad because I love my tan but I know that would just make me feel worse. So I'm now enjoying my balcony from 19:30 onward as it's the best time of the day, nice and cool and I can see the sunset! - Bliss


Funny episode (essay alert!) that happened last week was to do with a certain charity for young people with cancer.
M signed myself up a bit more than a month ago as we thought that we both needed counselling. The lady that identified herself as counsellor gave me a couple of dates to go to coffee meetings with other people with similar situation as mine. I wasn't able to show up to those meetings as one coincided with one of the days I was poorly and the other one had the electricity guy installing my smart meter. All of this to say that in the mean time, M signed himself up for counselling and they said someone would contact him soon. Two weeks later (probably a month later since the lady contacted me), M was not very impressed and sent them as email with his disappointment - Although they are a charity, they shouldn't commit to people if they are not going to help, so then people can find someone else instead of waiting - As answer to his email they said they had sent two emails - And they didn't (no, not even in the spam box) - then they almost begged to help.
This counsellor lady, called M but as he was at work and couldn't talk, she rang me. - I thought to myself: Oh lucky me, I've been needing to talk to someone in the last few days, perhaps she can help - Sure! - She started the conversation with the coffee meeting again and how I'd benefit from them - But oh, the next one is on my chemo week so I can't go again - and what she doesn't understand is that I don't feel confident just to show up somewhere where I don't know anyone and I wasn't even invited to take a friend. Anyway, then I went on about how sad and down I'd been feeling with everything going on and how the chemo week affected us, and, amongst all the crap cheer up talk she said: I should feel happy about the sun and should enjoy the sun and the good weather... - Ermm, lady, I can't catch any sun...I burn. How is that thinking happy if I can't do what I used to love? - I very politely answered with a "oh yeah...perhaps it will, although I can't really expose myself to the sun" - What's with this people to keep saying for me to enjoy the sun when I'm trying to hide from it.. - So then I kept telling her how depressed and feeling like crying etc, and she said: "Oh have you seen what happened to those people in London tower? That was awful, if you think that's so many things going on in the world"... And that's when I stopped listening - Is this person actually undermining my problems? I'm not a counsellor and I know, that we all suffer differently and cope differently with the same situation... and certainly stating that other peoples problems are worse than mine, doesn't particularly help with my one. By the end of it, she didn't offer any counselling session face to face. So I assume that was it, that was her professional input. Honestly, I do understand that is a charity, and they can't do face to faces as they might not have a private office, but that was the worst counselling session ever. Charity or not!
I'm a nurse, and if I was doing charity I wouldn't say to the person, "go home and bandage your wound yourself".

Oh well, on another note, there's news!

Last week on Wednesday was the 8 week mark for the genetics result. We've waited until the end of the week to see if anyone would ring, and no one did, so I've decided to ring them today. The receptionist said not all the results were back and the doctor was just discussing some of them with the laboratory. - Heart race! What does that mean? - So I patiently waited for the doctor to ring me back.
The tone of her voice and the preparation to initiate the conversation were quite frightening. "Your results are back, and they are all NEGATIVE for BRCA1 and BRCA2 mutation. But... - Shit, there's a but - I had to go clarify this with the lab today and you've got a variant in your genes, there's no evidence that variants cause cancer but that's what makes you be you." - So basically, I shouldn't worry about this variant, my family doesn't carry the genes, I won't pass the genes to my embryos, I won't have to have both breasts removed, my chemo will probably be reduced and still, I'm not jumping with happiness.
What's wrong with me? I should be jumping and celebrating. Instead, I'm blaming myself. What if it was something that I've done in my life that has caused cancer?

"Life cannot be written; Life can only be lived."

P.x

Sunday, 18 June 2017

Good Days and Bad Days

Some days we feel happy, and some days we feel sad...

We are allowed.

We don't have to be strong 100% of the time. Just keep going, you're doing the best that you can with what was given to you.
No other situation is better or worse, we all perceive difficult moments differently, not everyone cries for the same reasons and not everyone suffers intensely with grief the same way that not everyone is a smiler nor everyone cries with happiness.
I wish I could say that I'm holding on ok, for the people that don't know me, 80% of the time, I'm still smiling, still laughing, still standing. The other 20% I'm struggling with emotions. The "why me" still shows up to the scene every now and then, the "I want to give up" and "I don't want this anymore" were at their worst last week. It's such a roller coaster of emotions, because you know that what's making you worse is also what's making you better - but "why me"?? - the changes in your body that you can't control, it's all "to make you better". Better from this evil inside me that took over our lives.
It definitely makes a huge difference to have yourself surrounded by the right people but unfortunately most of them can't help. Most of the times I have to help myself and snap out of it. - Which I eventually did this week. I said to myself suck it up buttercup and move along!

On different note: My Hair!

Oh dear, the amount of things I have to say about this adventure with my hair.
By the end of last week, I had to cut my hair shorter because it was hurting on the pillow. It definitely helped - for 4 or 5 days - until it started itching my scalp and hurting specially when wearing scarfs. When you put a scarf on - specially the way I wear them - they have to be tight to the scalp so they don't fall, as most of the times they are held by tension. So things between me and my hair were definitely very "tense" So on Saturday, as an act of desperation and courage, I called the blades in! - M run away from me because it was making him cringe just the thought of it - I shaved most of it myself and L came to give me a hand on the back of my head.


It's gone now! - YAY me! - No more hair on the pillow, no more pain with scarves, no more pain with the wig, no more hair all over me after a shower, no more hair itchiness poking through clothes, no more worrying "the hair is falling so much". Now it's gone and I'm so relieved - Never thought I'd ever say this. (Never say never lol). 
So with all this I managed to wear my "Bella" for the first time - Yes I named it! It's a mix between my two favourite characters: Belle from Beauty and the Beast and Bella from Twilight - I'm a bit weird I know! - Another adventure with it, as I got it too tight the first time and had to go in a public toilet while we were out to re-adjust it as it felt like my brain was being crushed. Got it right in the end and managed to rock it at S birthday party in the evening. I'm very impressed with it, it feels very real and I like wearing it - Although not when it's really really hot.


Another thing I've noticed, my hair growth has stopped for now. Since I've shaved 4 weeks ago my body hair stopped growing, - which in my opinion it's the best part of chemo side effects - even my eyebrows don't need threading anymore! 

Not sure if I'm looking forward for another week of good weather where I can't enjoy fully, but, on the other hand, at least I'm feeling ok and don't have any side effects that are bothering me at the moment.

"Those who bring sunshine into the lives of others, cannot keep it from themselves."

P.x 

Sunday, 11 June 2017

Round Two - Two Down!

Damn! It's been a hell of a ride!


MondayChemo day. I went extremely positive to the chemo session. What was not to be positive about? It's one more chemo down. One closer to the end! Then after 3pm it's all a blur. Between feeling sick and tired and crying and panic about feeling sick, ringing the chemo line, ringing the GP for some prescription and waiting 3 hours to ring back and say that he can't help because he doesn't have the medication I need - I do understand now why people then go to A&E. So 3.30am and after a trip to the hospital for fluids and anti-sickness, I was back home in bed.

The rest of the week was a living hell. Even though I had extra anti-sickness, I was not able to tolerate fluids. Fluids made me feel even more sick. - But I needed to drink them! - Spent the week battling M and mum that were constantly trying to shove fluids down my throat. - Noooo. I hate this! I know that I have to drink, but I can't. The thought of it makes me sick. - Then jellies came to my life. And ice lollies! They made such a difference. - Learning curve for next chemo: Have jellies and ice lollies at ready! 
It's Sunday now and I'm still feeling sick, not as bad, I can drink now but not big amounts. It settles more when I lay down - which is basically what I've been doing all weekend anyway, as the GCSF injections started and I've got aches and pains and tiredness (like I've run a marathon). Only gone out for a couple of hours on Saturday just to enjoy the sun and a bit of fresh air and that gave me a 10hr night sleep. - Best lay in that we had in months though!

To be honest, it is with a bit of an effort I'm writing this time. I don't feel like talking, or writing or doing anything. But I'm forcing myself. I want to document my journey, and I want it to be fresh in my mind (although not a lot of details this time as I spent most of my week struggling with food and drink - Yes, that was all the excitement I had all week.Pyjamas are my best friend at least they don't tell me to drink - and pillow is my best confident (and professional tear holder). 
It's not been easy, I wish I could say it is. It's a really tough journey, not just physical but mental as well. The amount of times I feel like crying and sending everything to hell is unreal. But then I think I've got so much to look forward to in a years time and this is not the end of the road...
All I keep asking to *whatever/whoever* is out there is to only be 6 sessions instead of 8. I just want it to be over... 

Oh almost forgot! There was a bit more excitement this week: We had a call from the hospital saying that the neck biopsy came back negative!!! Whoop whoop! Don't have to do that one again.

I'm now M's little hedgehog - Head is very spiky and sometimes it hurts on the pillow, but in the middle of it all it's the least of my worries, and we laugh about it sometimes.

Now, because I still have a nurse in me and I won't ever stop preaching this: 
Please do check yourselves, be careful when you expose yourself to the sun, re-think your life choices (smoking and drinking and drugs) - This is so so hard... if you can avoid it, please do! 

"Change the way you look at things and the things you look at change."

P.x

Sunday, 4 June 2017

Short Short Short

Unless you've been through it, I don't think you will ever understand.

-- 3rd of June --

Today was The Day! Hair is gone.

Extremely emotional day. Since this morning my mind was made up but we had a day out with the family and I wanted to feel "normal" for one last day. But I didn't.
On Monday the 29th the first few hairs started to fall - but only 4 or 5 would show up on my hand whilst in the shower - and the scalp started to ache. On Thursday more hair started falling. Styling my hair with mousse kept it from falling too much during the day but a lot would come out at the end of the day.
Thursday - Friday - Saturday

Yesterday (Friday) the fall was pretty bad by the end of the day, I was afraid of going to bed and waking up with my whole hair on my pillow (a bit dramatic I know), lucky me that M has a bit of brains when I don't and he encouraged the hair cut as soon as I felt ready. But I didn't want to do it in the morning. I just wanted one more day feeling normal, without people staring. So all I got was a very self conscious me with shit loads of mousse in her hair to stick back all the loose hair on top of my head. Felt like if I touched it would all fall off.
All I thought the whole day was that it needed cutting, and I needed the courage to do it. Half of the motivation was there: my hair had become extremely annoying the last couple of days as it was making me itch every 5 minutes with each strand falling, and I knew I couldn't stand that for long - I am very picky with itchiness.
A very emotional evening followed.
As soon as we got home I grabbed M's clippers and I went for it. Hair fell down through the tears of both M and myself. I recognise that face in the mirror, but don't see myself. Hair is such a big thing for me, no matter how many times M or Mum or my friends say I'm beautiful with or without hair, I don't feel like myself. I don't want to look myself in the mirror.

                      

(I wrote all of this last night but didn't have the guts to post it online. I was feeling very down and there were a lot of tears from Mum, M and me. There's no words that can describe it. Yesterday Cancer took away a small piece of my smile and happiness. I will get it back, one day I will. In the mean time I'll just smile through the tears hold on to family and friends and hope for a better tomorrow.)

-- 4th June --

Today I've tried my first scarf!

Laying my head on the pillow is not painful anymore. So I can tell that is a positive of cutting it shorter.
Still didn't like the look of me in the mirror. A nights sleep didn't change that for me. I guess I'll get used to it.
Spent a good 15 minutes trying different scarfstyles and didn't like the ones I thought I would. The chosen one is not too bad, but I'll definitely have to keep trying.
The headscarf was a must today, we went to meet The Body Coach - Joe Wicks and get a signed book - he has really inspired us to start eating right and change the food that we bring home. Specially now for recovery post chemo that I need to eat the right foods to keep me going strong and healthy and kick cancer out of me.
We honestly believe that the cure for cancer is based in a mix of chemotherapy, good food and positive energy.

Anyway, wearing a scarf in public was not as bad as I thought. Didn't feel that many eyes on me, although I think it helped with they letting M coming in with me - I think the guy felt a bit sorry for me - to the signing as they refused other partners until I complained that we were allowed a +1.
We had a good day in the end and getting to meet Joe was definitely the highlight of our day!

Second chemo is tomorrow. I just hope the side effects are not too bad. Fingers crossed.

"Challenge your assumptions and identify your limiting beliefs. Every time you find yourself thinking that you can't do something, ask yourself 'Why not?' "


Thursday, 1 June 2017

Check It On the First ( . ) ( . ) ( • ) ( • )

It's the first of the month again ladies and gents!

Let's get those boobies out and get checking them!


No excuse for not doing it, takes 5 minutes, even if it is before getting up of just as you're going to bed. My post on the first of May show's how you can do it at home. Your partner can do it for you too!

Yesterday was a day of good news. We went for a repeat biopsy of my neck and an appointment with the oncologist.
I was a complete nerve wreck before the biopsy. The first time it was done, took about 20-30 minutes the whole procedure - the doctor might not have been as experienced - I cried that day because there was so much tension in the room and I was sure he was hurting my body even though I didn't feel any pain.
This time, completely different experience. In 5 minutes of being in the room I was ready to come out again. The doctor was amazingly quick - you can tell she was more experienced due to the difference approach on my neck - she told me to sit up instead of laying on the bed and the approach was through the back of my neck which made a huge difference! I just hope this one comes with some sort of result and not inconclusive again.
Pain wise I can tell you now that was nothing compared with the previous one. On the first one I felt pain for a few days and the week after I could still feel bruised inside. Last night I didn't even struggle to fall asleep, no extra pain relief was required apart from the local anaesthetic and paracetamol they gave me there and then.


To be honest I was ready to get there and refuse to have it done by the same doctor as my experience was horrendous and made me be anxious about going for a biopsy again - and I'm usually brave for all those medical interventions. And people that know me, know that I'm even up for medical students or junior doctors try things on me, as long as they've got a back up or someone to go to if they can't do it - that wasn't the case.

The appointment with the consultant was unexpectedly good! First we had results from bone biopsy and it's Clear!! M had lots of questions, especially related to my "lack of symptoms" after chemo. The oncologist said it was completely normal to only have a few but she offered to give more medication just in case I needed it. The only thing she added was codeine for my aches and pains post chemo and post GCSF injections.
Doctor was very happy with the way I was coping with everything and lack of symptoms that she wanted to examine me and my tumour. - "I won't expect to find it any different but we should check" - M and I looked at each other and said instantly: "But we have noticed a difference." About a week and a half ago I thought I'd check on the lump and as we were trying to find it we've noticed that was almost gone. We didn't want to jinx it or anything so we waited until the doctor confirmed that has significantly reduced. She was so amazed at it and surprised that gone down with just one chemo. Now we just have to wait for the genetics results and if the gene is negative, I might only have to do 6 rounds of chemo instead of 8!
And those are great news!

Mum arrives today as next chemo will be on Monday so we are aiming for some good quality time over the weekend before side effects come back to torture me again. Bring it on! 💪

"We can complain because rose bushes have thorns; or rejoice because thorn bushes have roses"

P.x 

Sunday, 28 May 2017

Weekend of Deep Thoughts

There's been moments that I just want to escape this world and reality.

This weekend was one of those moments.

Cancer has taken over our lives, and we don't want that. We need to be in control. we need to be able to do things without being afraid of cancer. We need to stop our brains to remind us of this horrible fate that came upon us. We're not able to remember life before cancer, we don't know how it feels anymore. Everything changed. The way we see the world and the way the world sees us. I don't want people feeling sorry for me, I want people to still tell me their happy thoughts and their happy moments, share with me their daily struggles and moans without thinking that "oh you're going through worse". No! We all have battles, we all have our good and bad moments that we like to share with other people. Don't think for a second that I won't be happy for you or for your achievements. 
If something, cancer made me see that there's more to life than holding grudges and feeling jealous of people. I've learnt that every single one of us have their own struggles and battles to fight and it doesn't matter what they are, because at that point in time they are important. Don't judge people if they are going through a bad moment, they might be fighting a battle you know nothing about, because not everyone shares their life on social media. 
Be kind to one another and love each other.

- Deep thoughts over - 

Friday was my first day out in two weeks. I felt anxious. I hadn't seen people - apart from family - since I had my hair cut and had my chemo - ridiculously that made me feel vulnerable and afraid of the world. It's unbelievable what a couple of weeks without being a sociable person can do to you. After I was out with the girls definitely felt more confident and end up having a really good time with the old gang!
As per the rest of the weekend, back in February - far away from thinking this would have come so handy - we booked a weekend away by the beach, just because we thought it would be a good idea. And sure it was. A month ago we didn't even know if we would be able to make it, the way people "painted" cancer was so much more horrendous than what it actually has been. And we are extremely thankful for it. We never thought this weekend would come in such a good time and it was so needed. All we've been doing for the last 2 months is cancer related, there's not one single day we don't speak about it, with friends, relatives or complete strangers.

So this weekend we ran away from all of that and decided to be normal and feel normal. It was just the perfect weekend for it! So lucky with the weather. M and I went with a couple of friends and we all had our first BBQ on the beach, lots of walking, ice creams, a day on the beach and the first swim of the year (not for me, L was the brave one!) But the most important thing, we laughed!


The only thing I always had to be aware of was the sun. 50spf every day before leaving the house and looking for shade whenever possible. The big hat I bought is very handy but not when it's windy. 
A lot of water to make up for the heat and a good rest after the long walks and I managed to have a normal weekend away. 

Now, ahead we've got a pre-chemo week - I know... it's gone so fast!
No more horrible side effects so far. So I'm pretty happy with the good week that I promised myself!
Every day we make it without side effects is a win! We have now learnt how to appreciate those days - although we still feel like it's a bit of a miracle.

"Sale away from the safe harbour. Catch the trade winds in your sails. Explore. Dream. Discover."

Wednesday, 24 May 2017

Life is Never Boring

I have decided that this week will be a good week.

Even though I'm in pain. It has to be a good one.

Mum has gone back home on Monday and it might be the last day she sees me with this hairstyle. So first we had to take a selfie!


The hair should start falling around day 14, and we're at day 10 already. Everyday I've been playing with it, making those little twists that most of us secretly like, and everyday I've got this secret fear that one of those twists will just get stuck around my finger and comes off my scalp. - So I keep checking. And nothing so far. - Anyway, if it does, at least is while I'm doing something I enjoy. Looking at the towel after a shower and look for "hair loss" has become a habit too. I shouldn't be so obsessed with it and should just embrace it, but I think I want to cut it really short before bigger amounts start falling. So let's embrace it and try to take it as a part of the process, similar to all those injections and medical interventions. 

Hair update:
The wig is ordered, Tracey came to see me on Monday to do a color and length consultation, 
I've got a feeling that I'll like it, just afraid it will be to hot to wear, but as M says all the time: "then you'll have the option". - The baldness will remain until winter time anyway, so I'll have plenty of time to use it. 

Medical interventions update:
Another thing that happened last week, we got a phone call from the hospital saying that they need to repeat the ultrasound and biopsy of my neck as it came inconclusive, the good thing is: it won't be this week. I'm waiting for a letter and definitely not looking forward to it. I'll have an appointment with the oncologist next week and will get the bone scan results and hopefully she can stage the cancer once and for all.

Fertility update:
We've got 3 little embryos that have been frozen and will be waiting for us in a few years time and that is sooooo exciting! We've got 3 tiny lives awaiting us and despite the fact there is 50/50 chances of them implanting first try, it's a pretty good thing to hold on to!

Last night I had my last injection of GSCF (Filgrastin) and since then been having horrible bone and muscle aches. It feels like someone is squeezing my bones together from the inside in 10 second intervals, leaving me with weak legs and difficulty in breathing for the duration of the spasms. This is the best I can describe it as they are located mostly on my lumbar back and rib cage (from the back to the front) weirdest feeling ever. - I know... seems like I've got a new thing every day, my life is never boring! - M looked pretty scared this morning when he caught me on my way to the floor as both of my hands were occupied and I wasn't quick enough to hold on to something.

So uncle R had to take me to the nurse today for my new injection (Zoladex it's name, also known as Goserelin) as I was unsafe to drive myself - thank goodness this one is only every four weeks and I don't have to do it myself, whoop whoop!- This injection will cause a temporary menopause with the intent to save my ovaries from being so damaged with the hope that I can get the fertility back. Fingers crossed.

"Strength grows in the moments when you think you can't go on, but you keep going anyway."

P.x 

Monday, 22 May 2017

Not So Good Week

When you think things are almost going back to normal, there comes the hormones to ruin it again.

(Sarcasm alert!)

I felt normal for 2 days... just 2 days.


Then a stream of emotions came down on me. Well, it definitely arrived a little to early. But that's exactly what happens, our monthly old friend always shows up when we least expect.
Since I had to inject myself with those stupidly high doses of hormones that my body doesn't really know what's happening, or what it's supposed to do, or when - We're both confused really - So now we both have to cope with a 15 year old version of me: irrational crying (actually spent an hour in the bathroom crying - shame on me), extreme mood swings (leave me alone kind of thing), lower abdominal pain (back to curl up in bed feeling sorry for myself) and headaches (however there might be another reason for those). All those "cool" things that I used to hate as a teenager and got promised they would go - oh they did... temporarily, with my good old friend pill (never truly appreciated how easy the pill made things for me, until now).
And now as it's been a week since my first chemotherapy, my immune system might start to lower it's functions and for that reason, brilliant doctors or scientists created another injection for me to take. Filgrastim it's name. Another horrible little devil that hurts like hell to be injected and the side effects make me feel like I've been run over by a bus: Headaches (the kind that makes me feel like my brain is going to explode through my eyes), tiredness and aches around my body (enough to keep me in bed for half a day). 

As you can see, not been in a very good mood to write, nor my eyes would allow me. 

My daily walks eventually turned into going out food shopping too and I'm pretty sure some days I've overdone it. But I want to feel useful. No one lets me carry any bags or shopping baskets, but I want to. I don't feel right, walking around the supermarket with my 60 year old mum carrying the shopping for me, knowing that she has her own aches and pains to deal with. 

It's awful when sometimes I feel so weak that I might break but some days when I feel better I wish people wouldn't look at me as if I'm made of glass. I used to love my independence, doing things on my own, but now I feel like all I do requires a second person to "assist". And it's so frustrating
I've done so much and came so far on my own, is this some learning curve showing me I should rely more on other people? That is best if we are united and live in society? Perhaps life is trying to teach me that old motto "Together we are stronger" - Thanks life, but I think I already knew that one!


On the bright side I got to spend a few days with my mum and had a nice dinner with friends even feeling at my worst. Because that's exactly what friends are for, to pick us up when we're feeling down. 

"Here's to strong women. May we know them, may we be them, may we raise them"

P.x

Wednesday, 17 May 2017

Day 2 Post Chemo

Day two post chemo wasn't as bad as we thought.

The first night I had horrible aches just before I went to bed and had a paracetamol that helped just to take the edge of it, enough for me to be able to fall asleep and have a good and rested sleep.

Yesterday only a lot of tiredness in the morning and  eventually had a nap in the morning after breakfast as I wasn't feeling well. After a healthy "mummy cooked lunch", we went for a walk (as per every nurse and oncologist instructions) 30-45 minute walk - we didn't really count - it was lovely, sun was out and the nature is so immense around here were we live, so much green around us that inspired us to keep going. Saw some neighbours and had some doggy cuddles and that was good too. It was just unfortunate that I got home extremely tired and stayed in bed for a good hour and a half.


After my rest seemed like I had drunk some kind of energy drink. I was ok - despite a bit of sickness, but I was ok.
Got up and felt energetic, mum was happy with it, I baked a cheesecake, done my nails and cooked dinner when M got home. Felt really proud of myself.
Then I felt like I've done too much and spent too much time on my feet as I was so so tired.

"Walking in the nature is a sure way to help you de-stress and get your creative juices going."

P.x

Monday, 15 May 2017

Round One of Chemotherapy

First day of chemo today.

Not as bad as I imagined. - It never is.

Not a lot of sleep last night. Woke up at 04:00 for the normal "morning wee" and couldn't sleep anymore. My gastritis thought it needed a bit of attention as my stress levels were high and they don't like each other. It was so much pain in my stomach that I couldn't sleep properly anymore. Managed to get breakfast down my throat because it needed to be done before heading to hospital.

We were called in and Mum and M were able to stay with me throughout the whole session. The nurse was so kind and inspirational, she explain everything as if was my first time dealing with chemo and that felt good. When it concerns to ourselves the nursing goes a little out of the window and we're not rational anymore.

The nurse started asking if I wanted to try the cold cap. Everybody speaks so much about it but there's so many divided opinions. I wanted to try it on, but had a strange feeling I wouldn't cope with it. And I wasn't far from being right.
I've requested to try it under the condition I would take it off straight away if I couldn't cope. The nurse chose the size medium for my head - I'm glad at least I'm not big headed - and slid it in my head - It felt horrible, so tight and uncomfortable. I Can't even imagine the cold that would make it expand even more and get it even tighter. - I hesitated and the nurse straight away realised it wasn't for me. Tears rolled down my face, not sure if it was disappointment or just because the whole situation took control over me and for a second I was not in control and frustration came out in a form of tears.
The nurse was amazing dealing with it. She gave me a hug and tried to explain to me that is not used that much as most of the people don't really tolerate it but it was worth to try it on and at least I know. - I won't die stupid now.


My chemo regime is Epirubicin and Cyclophosphamide for 4 cycles three weeks in between them. And after that I'll start Paclitaxel for another 4 cycles. But before she started giving me the chemo was time for Dexamethasone 8mg tablets - after the good old friend Omeprazole - and a good lot of Ondasentron intravenously for the sickness. Inserting the gripper in my portacath was less painful than I'd imagined - I had never asked my patients before and this is giving a whole new experience. -  The gripper is a special needle that goes inside the rubber part of the portacath (as I showed on the picture two posts ago) and only penetrates a very thin layer of my skin so it doesn't hurt as much, it hurts more the fact that the whole area is still bruised than the actual needle. I had a saline bag put through just to flush the line and another bag with the Ondasentron. Great experience so far as for the first time didn't feel any drugs going up or down my arm - Oh happy days! - I really didn't like that feeling.
This was followed by a bag of fluid whilst the nurse pushed the drug in very slowly with a big syringe, 5 syringes in total and they both made me have a weird taste in my mouth. - I can only describe as the smell of old hospitals, if anyone can relate. Another bag of fluids was put up to flush all of it around my body. Good thing is, that was half of my fluid intake for today so that's great!
After it all felt a bit lightheaded for about an hour after and then felt normal. - Oh P, you just wait a few hours so you stop feeling normal again. - Bang! 17.00 and tiredness hit, head felt heavy, legs and arms felt heavy and uncomfortable and asking for bed. And that's exactly what I gave them.


Although was a very emotional day for all of us we are still smiling and being positive that together we'll kick Cancer's arse, and we have friends and family looking after us.


And then got home to a special gift that came from heaven!


"There is nothing prettier in the whole wide world than a girl in love with every breath she takes."

P.x

Small (Big) Achievements

Today I feel happy! So I've decided to share! Do you ever feel you go through life not noticing the good things that are happening ...

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